Wednesday, April 23, 2014

Yes, I'll have a shutdown with a side of self-loathing please... and a coke.



So in an earlier post I talked a bit about overstimulation and how to try to avoid it if at all possible, but what happens if you can't avoid it? Consequences my friend, consequences.

Aspies, and autistic people in general, usually respond in one of two ways. We're either going to meltdown, or shutdown. Let me explain the difference between the two.

Meltdowns are hard, especially if you're a parent or loved-one trying to deal with it. For people who don't know much about autism, they can look a lot like a temper tantrum, but there's actually a big difference between the two. 

A temper tantrum is very straightforward. A person does not get his or her own way and, as my grandma would say, "pitches a fit." This is not to discount the temper tantrum. They are not fun for anyone.
Tantrums have several qualities that distinguish them from meltdowns.
* A person having a tantrum will look occasionally to see if his or her behavior is getting a reaction.
* A person in the middle of a tantrum will take precautions to be sure they won't get hurt.
* A person who throws a tantrum will attempt to use the social situation to his or her benefit.
* When the situation is resolved, the tantrum will end as suddenly as it began.
* A tantrum will give you the feeling that the person is in control, although he would like you to think he is not.
* A tantrum is thrown to achieve a specific goal and once the goal is met, things return to normal.

However, if the tantrum is straightforward, the meltdown is every known form of manipulation, anger, and loss of control that the person can muster up to demonstrate. The problem is that the loss of control soon overtakes the person. He needs you to recognize this behavior and rein him back in, as he is unable to do so. A person with autism in the middle of a meltdown desperately needs help to gain control.
* During a meltdown, a person with autism does not look, nor care, if those around him are reacting to his behavior.
* A person in the middle of a meltdown does not consider her own safety.
* A person in a meltdown has no interest or involvement in the social situation. 
* Meltdowns will usually continue as though they are moving under their own power and wind down slowly.
* A meltdown conveys the feeling that no one is in control.
* A meltdown usually occurs because a specific want has not been permitted and after that point has been reached, nothing can satisfy the person until the situation is over.

Its been my experience that most autistic people who experience meltdowns are younger, usually a child or a teen, and that most older autistic people, especially Aspies, experience the second form of overstimulation response, the shutdown. While a meltdown could be described as rage against a situation, a meltdown tends to be more of a retreat. Behaviors which manifest during a shutdown include rolling oneself into a ball or fetal position, crawling under objects or lying face down or completely under the covers on a bed. Eye contact avoidance tends to increase significantly during a shutdown and conversation is non-existent. As with meltdowns, in a shutdown situation, the person may act irrationally or dangerously. Unlike a meltdown however, the harmful activities are almost always directed at oneself. The person may attempt self harm and may even be suicidal. They may be more likely to take reckless risks such as walking along a busy road on a dark/rainy night.

As with meltdowns, the cause of a shutdown tends to be cumulative and the trigger may bear little resemblance to the actual problem. The real problems associated with shutdowns tend to lean towards depression, loneliness poor self image and poor self worth.

In a small child, a shutdown may be triggered because of a simple breakfast issue (perhaps they were given something they don't like). In this case, the cause may actually have nothing to do with breakfast at all but rather it may be symptomatic of the child's frustration at not being able to make herself understood. In an adult however, shutdowns can result from extreme events such as losing a job or a marriage break-up but they can also have very small triggers which simply "remind" an Aspie of a larger pain. Perhaps a small incident at work could provoke some long term insecurities and cause a retreat.

For me, a shutdown will move my pain to the center of my focus and I'll start thinking "what if" and "if only" scenarios. These are always counter-productive because you can't change the past and they usually only make me feel entrapped by events. I'm not so much of a fetal position person but I do tend to "check out." During a shutdown, I generally don't have any contact with anyone if I can help it and become extremely introverted. I sometimes think of it a bit like a turtle shell that I crawl into (unwillingly.)

As a child I'd often try pathetic ways of harm, like holding my breath or strangling myself. Note that I didn't do this as attention-seeking behavior but instead would attempt it unannounced and in solitude. I'd also attempt self harm but usually only by banging my head or pummeling myself with my fists. I know quite a few Aspies who have, and in many cases continue to, self harm using sharp instruments. As a parent or friend, you need to keep a close eye on these situations.

Like all Aspergers things, there's not really a cure however self-respect goes a long way towards prevention. If you have children, it's very important to counter any negative messages they're receiving from others. If those negative messages are coming from teachers or family, then you may need to get involved yourself.

Unlike meltdowns, where it's best to leave the Aspie alone but in a safe place, it's generally okay to talk in a soothing voice during a shutdown. Just make sure that you're careful what you say and keep things positive. The only thing to remember when soothing during a shutdown is that you're still dealing with a person on the spectrum. Don't try to force eye contact and don't touch without either being invited or being cautious to see the reaction first. Also unlike meltdowns, which tend to last a few minutes or in extreme cases, an hour or two, shutdowns can last days, or weeks. If left to their own devices, it can quickly become a vicious downward spiral for many Aspies leading into depression, and triggering shutdowns more often, and then, ya know, wash, rinse, repeat. 

Tuesday, April 15, 2014

50 Shades of Gray? Maybe just 1 or 2...



A lot of people tend to believe that people with Aspergers, or people with Autism in general, can only think in "black and white". That there is no room for a "gray" area.  A lot of people on the spectrum are like that, although I can't speak for everyone. I tend to see things slightly differently. It's not that I CAN'T think in "gray" terms, because I certainly can see SOME gray in some situations. Sometimes it's just that I don't know that there is a "gray" area.  

Imagine if when you were growing up, you were taught that the colors green and yellow were the same color.  So when you are driving, all you see are the "stop" and "go" colors.  There is no such thing as a "slow" color, because you have been taught that it is the same color as "go" (Slow is yellow, go is green....but you have been taught that the two colors have the same meaning. Now you're getting it!)  Now, after years of knowing only the stop or go, someone asks you why you don't slow down.  Why don't you see that "gray" area?  It's not because you can't.  It's because you never knew it existed.  What is this "slow" color that they are talking about?  Why are you just now hearing about it? Why is this imaginary person side-seat driving?   

It's not that I CAN'T see the "gray" area.  Sometimes, I just don't know that it's there, or maybe I just don't know specifics of it. At what speed am I considered to be going "slow"?  So excuse me if I don't always see it, I'm still in training. And if you don't like the way I'm driving, get off the sidewalk. 

Friday, April 11, 2014

If you need me, I'll be under the bed this week.


Overstimulation. Its something people with Asperger's deal with on a nearly constant basis. Although what overstimulates an Aspie can differ in a lot of respects. It can range from sounds, lights, fragrances, touch, you name it. Everybody's got a tolerance threshold for all these things, but an Aspie's threshold can be very small, and you can run head long into it very quickly in today's world.

For me, its a couple of things. The first is crowds. I hate crowds. I say that and most NT's (NeuroTypicals a.k.a. Non-Aspies) are like, "Oh yeah, I hate crowds too." No, no. I mean, if the nice lady blocking the only exit out of a very expensive engraving store in the mall hadn't seen the frantic look in my eyes as I went hauling for the door, I may still be paying off damages.

The second thing for me is sound. Some sounds drive me insane. Finger snapping, yelling, high pitches, these are just a few sounds that can quickly send me over the Aspie-edge.

Lastly, fragrances. Alot of perfumes cause me to get irritable, edgy, slight headaches. They just overwhelm me! Walking though a perfume department in a store is like a Mike Tyson-Stimuli beating my brain and then biting off its ear. I tend to avoid them if at all possible, or at the very least, hold my breath.

Most people know that once an Aspie gets overstimulated, we need just the opposite, very little to no stimulation. Sometimes we need stimulation of a different sort. Some Aspies, like me, bounce their leg up and down all day and drive people crazy sitting behind us in a booth in a restaurant. Some Aspies like to rock themselves (which I do sometimes),  or fidget with their hands, or bite their nails. A lot of things we consider to be "nervous tics" can often just be a form of stimming.

So with all this stimuli in the modern world, what's an Aspie to do??

One thing I find that helps, although it takes some practice, is having what I call an "anchor." My anchor just happens to be my daughter. I'll give you an example. I love Disney World. Love love love it. However, its not without a hefty price on my emotional and mental well-being. You can just imagine how taxing a place like that must be for an Aspie, and you'd be right! It drains me like nothing else. However, since I can't stop the drain, I can at least keep the immediate behavioral consequences in check with my anchor. What I call an anchor is just something to keep you grounded, something to focus on, one single simple something, that keeps you from flipping out entirely. I love my daughter dearly, and so she calms me. When we're waiting 30 minutes in line for "It's A Small World" and I'm surrounded by sweaty strangers, I can scoop her up, and she talks to me softly and she pets my cheek and she calms me. She's not a shield though. I'm still going to suffer later, but in the meantime, I can enjoy life with my family like a NT would. I've read about other kids who use this practice with stuffed animals or small toys that they can sort of channel their emotions into. I won't say it works for everyone, and it certainly takes a LOT of practice to put the blinders on and focus on your anchor, but in the end its well worth it if you can succeed. 

Thursday, April 10, 2014

Get Out of My Bubble!


So, let's talk about the Aspie bubble for just a second here. What is the Aspie bubble you might ask? Simply put, its my personal space. Everyone needs it, but Aspies tend to need it just a bit more.

Most people who know anything about people with Asperger's know that we don't recharge like normal people. We recharge with alone time, quiet time, time sans people. This being said...

Family after being out in public or coming home from work: I love you, but you're in my bubble.
Coworkers who keep coming to my desk: You're in my bubble.
Waitress when I'm on the end of the booth: You're in my bubble.
Person selling stuff from a kiosk in the middle of the mall isle: You are so far in my bubble you make me want to find a high powered rifle and a water tower near you.

Anyway, you get the picture. Moral of the story? If your Aspie is starting to get over stimulated, let them be! Leave them alone! Let them recharge before they chew on your naval! Also, if you're an Aspie and you start to get overstimulated, find the nearest laundry hamper and dive in! No one will ever suspect it...

Confessions of an Aspie


Being an Aspie is a lot like being an alien. You constantly yearn for your home planet, all the while looking around you and wondering how the hell you got here and what is wrong with these people.

I had always had this feeling, even as a kid. My teachers said I was a daydreamer, the kids just thought I was weird, and my parents thought I was antisocial. Truth is, I'm just as Aspie! Of course, at the time, I didn't know it, and neither did anyone else. I was just that picky kid with odd social tendencies and a big fat chip on each shoulder. I hadn't even heard of Asperger's until my late 20's and believe you-me, it was a hard pill to swallow.

"I'm Autistic? That can't be right... I'm made wrong? I'm not normal? I'm defunct?"

This was my initial reaction. Now, before you go getting your Aspie-panties (Aspiantes? Aspanties?) all in a twist, you've got to think for a second. This is what Autism looked like to someone uninformed and uneducated on the subject. I had no idea that Autistic people could talk! I never dreamed that I could be Autistic! But there I was, looking straight down the barrel of the truth, and it was locked and loaded, ready to blow away all my incorrect misconceptions.

Now, go back a few years when my wife was ready to divorce me. I never interacted with her in a way that met her needs (again, we didn't know why yet.) It was a tough road and after a 10 minute visit with a shrink he said I had ADD. Well, partially true I guess. I'm sure I do have ADD, buts its a side-car symptom if you will to the Aspergers that he DIDN'T catch. Either way it was an answer to my behavior, right? So I spent the next few years all jacked up on Ritalin and Adderall, happy for the corrections it gave me at work, but it didn't fix everything. I still always felt off, and I still wasn't 'social' like my wife is. I was better, but I wasn't "correct," and it certainly wasn't worth the cost of the side-effects.

Flash forward and I hear about this thing called Asperger's Syndrome. What? What is this? High functioning Autism? What the hell is that? Wait... this sounds like me! And this! And this! I need to talk to my doctor...

So I did. And she agreed. And we tested. And I "passed." So there I was. Autistic. At 29 years old, I find out I'm Autistic. All that wondering, all those problems that couldn't be explained, or were wrongfully explained. Even my wife told me a year or so later she felt bad about all the times she pressured me into social situations or thought I just didn't want to spend time with her because she just didn't know. That was the crux if it though, we just didn't know! So I spent countless hours reading about it. I would read some of the medical stuff but to me it was the first hand accounts that were the most valuable. It was nice to know that I really wasn't alone.

So, I guess that's what this blog aims to be. I hope maybe someone like me comes along and reads this and says, "Wow. I'm not alone. I feel better now." I could give you the whole story now, but that wouldn't really leave room for future posts now, would it? ;-)